WA Rheumatic Heart Disease Register

Statutory notification

Acute rheumatic fever (ARF) and rheumatic heart disease (RHD) have been notifiable conditions in Western Australia since the19th June 2015 when the Regulations were published.

You have a duty to give notice when you suspect that a patient has, or is currently being treated, for ARF or RHD. This includes knowledge of previous diagnoses or treatments, even if made in another State or Territory. This also includes notification of recurrence of an ARF episode that has already been notified to the WA RHD register program.

Both confirmed cases and probable cases of ARF should be notified to the Register.

Read more about the mandatory reporting requirements (PDF 176KB).

Please be advised that the 2020 Australian guideline for prevention, diagnosis and management of acute rheumatic fever and rheumatic heart disease (3rd edition) has been released and are now available on the RHD Australia (external site).

Acute rheumatic fever

  • Complete an ARF and RHD notification form (Word 97KB) and return to the WA Rheumatic Heart Disease Register and Control Program
  • Provide a copy of each diagnostic test (including an echocardiogram if available) for all patients in the acute phase of ARF within 14 days of receiving the results of a medical test
  • Provide a copy of each medical specialist’s report for all patients in the acute phase of ARF within 14 days after the medical specialist finalises the report.
Acute phase: in relation to a patient with acute rheumatic fever, means the period:

(a) beginning when the patient is diagnosed with acute rheumatic fever; and
(b) ending 3 months later.

Rheumatic heart disease

  • Complete an ARF and RHD notification form (Word 97KB) and return to the WA Rheumatic Heart Disease Register and Control Program.
  • Provide a copy of each diagnostic test (including an echocardiogram) within 30 days of receiving test results.
  • Provide a copy of each medical specialist’s report within 30 days after the medical specialist finalises the report.

Please ensure the following personal information of the patient is provided:

1. Unique Medical Record Number (UMRN), if patient seen at a Health Department WA (HDWA) site.

2. Full name, address and contact details.

3. Sex and date of birth.

4. Ethnicity, if known, including Aboriginal, Aboriginal and Torres Strait Islander, or Torres Strait Islander descent.

5. If the patient is under 18 years of age, the full name and address of a parent or guardian.

The WA RHD Register and Control Program may contact you to request further information.

How to notify

Notification is given to the WA RHD Register and Control Program, under delegated duties of the CHO.

Department of Health health service providers can submit notifications by secure file transfer email (external link) to RHDRegister@health.wa.gov.au

External providers can submit notifications by fax to (08) 6553 0899 or by secure file transfer email (external link) to RHDRegister@health.wa.gov.au

Phone: 1300 622 745

Limited disclosure

Health professionals need to inform patients that it is a statutory requirement to send information to the WA RHD Register. A patient may request in writing limited disclosure of identifying information available to health sites and health professionals.

Guidelines

Patient advice

Related Links

More information

For further information please contact

WA Register and Control Program

Phone: 1300 622 745
Fax: 6553 0899
Email: RHDRegister@health.wa.gov.au

Last reviewed: 18-03-2020
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Public Health