Cervical Screening Registry

The Cervical Screening Registry (CSR) is a key part of the WA Cervical Cancer Prevention Program (WACCPP). It maintains and operates the Register – a central confidential database of Pap smear and other cervical screening test results (including cervical biopsy and human papillomavirus (HPV) test results) from women screened in WA.

The CSR operates in accordance with the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

Cervical screening registers operate in all states and territories in Australia as part of the National Cervical Screening Program (NCSP). The NCSP aims to deliver an organised approach to cervical screening.

In late 2017, a new National Cancer Screening Register will be established, replacing the eight state and territory-based registers. Find out more about the new Register (external site).

How information is collected

When a woman has a Pap smear or other cervical screening test, some of the information relating to the test is forwarded to the CSR by the examining laboratory.

Information is collected by the CSR, as required by the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

The information recorded includes the woman’s:

  • name
  • address 
  • date of birth 
  • Medicare number
  • date and result of the Pap smear or other cervical screening test.

The laboratory will also provide the CSR with:

  • identifying codes for the laboratory that examined the woman’s Pap smear or other cervical screening test 
  • identifying codes and details for the healthcare provider who performed the test. 

Use and access of information

Use of information

In accordance with the Health (Cervical Screening Register) Regulations 1991 (WA) (external site), information held on the Register is used by the CSR for the following purposes:

  • to notify women with a normal cervical screening test result of the appropriate time for their next test; 
  • to ensure that appropriate procedures are put in place for women whose test results are abnormal or unsatisfactory;
  • to provide a linked record of results for every woman on the Register;
  • to provide comparative data from laboratories to encourage consistency of performance; 
  • to provide epidemiological data for program planning, monitoring, evaluation, reporting, statistics and approved research; and
  • to monitor and evaluate the effectiveness of vaccination programs for the prevention of the human papillomavirus (HPV).

Access to information

Under the Regulations, the following people can access the CSR information:

  • the woman 
  • the woman’s healthcare provider 
  • the laboratory that examined the cervical screening test

Updating contact details

The CSR relies on current details to send reminders to women. Women should be encouraged to notify the CSR if their name or address has changed via the contact details below.

Alternatively, they can download a change of name and address form (PDF 256KB) or (Word 381KB) and post, email or fax it to the WACCPP. 

Informing women about the CSR

Women should be informed that their results will automatically be forwarded to the CSR, unless they choose for this not to occur.

To inform this choice, healthcare providers should notify women of:

  • the existence and purposes of the Register;
  • the personal and health information that will be sent to the CSR;
  • the ability to ‘opt-off’ the Register so that test results will not to be sent to the CSR; and  
  • the implications of ‘opting-off’ (i.e. they will not receive a reminder letter should they become overdue for a cervical screening test).

‘Opting-off’ the Register

If a woman chooses not to have her results sent to the Register, she must inform her healthcare provider at the time of the test. The healthcare provider must then notify the examining laboratory that the woman does not wish for her results to be forwarded to the CSR. This can be achieved by clearly marking the pathology request form, e.g. “Not for Registry”.

A woman can also withdraw her details from the Register at any time by writing to the WACCPP via the contact details below and providing the following information:

  • full name
  • date of birth
  • address
  • Medicare number. 

Upon request for withdrawal, the CSR will provide the woman with a letter of acknowledgement.

Requesting data from the CSR

The CSR plays a vital role in providing healthcare providers a complete WA cervical screening history to assist in the management of women with screen detected abnormalities.

The CSR can also provide epidemiological data to:

  • monitor participation rates and patterns
  • assist program planning
  • support approved research – alleviating and preventing cervical cancer
  • increase public awareness by publishing statistical profiles
  • assist compilation of comparative data by national organisations approved by the data custodian.

To discuss your data requirements, please contact the WACCPP via the contact details below.

Making a complaint

To make a complaint regarding the CSR, please contact the King Edward Memorial Hospital Customer Service Unit (external site).

If this approach does not address or resolve the complaint, then the matter may be taken to the Health and Disability Services Complaints Office (HaDSCO) (external site).

More information

WA Cervical Cancer Prevention Program

Opening hours: 8.00am – 4.30pm, Monday to Friday
Phone: 9323 6788 or 13 15 56 (cost of a local call)
Email: cervicalscreening@health.wa.gov.au
Fax: 9323 6711
Address: 1070 Hay Street, West Perth WA 6005

Produced by

WA Cervical Cancer Prevention Program