Cervical Screening Registry

The Cervical Screening Registry (CSR) is a key part of the WA Cervical Cancer Prevention Program (WACCPP). It maintains and operates the Register – a central confidential database of Pap smear and other cervical test results (including cervical biopsy and human papillomavirus (HPV) test results) from women screened in WA.

The CSR operates in accordance with the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

Cervical screening registers operate in all states and territories in Australia as part of the National Cervical Screening Program (NCSP). The NCSP aims to reduce cervical cancer incidence and mortality through an organised approach to cervical screening.

Transition to National Cancer Screening Register

The National Cancer Screening Register has been built to support the renewed National Cervical Screening Program and replace the existing state and territory registers. Find out more about the new Register on the Australian Department of Health website (external site) or visit the National Cancer Screening Register website (external site).

What does this mean for registry services in WA?

In early 2018, CSR services will transition to the new National Cancer Screening Register. Until this time, the CSR will continue to:

  • provide a ‘safety net’ for WA women by sending reminder letters when cervical screening or follow-up tests become overdue; and
  • provide cervical screening histories to laboratories and healthcare providers to support the clinical management of women.

To request a patient’s screening history, please contact the WACCPP via the contact details below.

Information collected by the CSR

Information is collected by the CSR, as required by the Health (Cervical Screening Register) Regulations, 1991 (WA) (external site).

The information recorded includes the woman’s:

  • name
  • address 
  • date of birth 
  • Medicare number
  • date and result of the Pap smear or other cervical test.

The laboratory will also provide the CSR with:

  • identifying codes for the laboratory that examined the woman’s Pap smear or other cervical test 
  • identifying codes and details for the healthcare provider who performed the test. 

Use and access of information

Use of information

In accordance with the Health (Cervical Screening Register) Regulations 1991 (WA) (external site), information held on the Register is used by the CSR for the following purposes:

  • to notify women with a normal cervical screening test result of the appropriate time for their next test; 
  • to ensure that appropriate procedures are put in place for women whose test results are abnormal or unsatisfactory;
  • to provide a linked record of results for every woman on the Register;
  • to provide comparative data from laboratories to encourage consistency of performance; 
  • to provide epidemiological data for program planning, monitoring, evaluation, reporting, statistics and approved research; and
  • to monitor and evaluate the effectiveness of vaccination programs for the prevention of the human papillomavirus (HPV).

Access to information

Under the Regulations, the following people can access the CSR information:

  • the woman 
  • the woman’s healthcare provider 
  • the laboratory that examined the cervical test

Updating contact details

The CSR relies on current details to send reminders to women. Women should be encouraged to notify the CSR if their name or address has changed via the contact details below.

Alternatively, they can download a change of name and address form (PDF 256KB) or (Word 381KB) and post, email or fax it to the WACCPP. 

‘Opting-off’ the WA Cervical Screening Register

If a woman chooses not to have her results sent to the Register, she must inform her healthcare provider at the time of the test. The healthcare provider must then notify the examining laboratory that the woman does not wish for her results to be forwarded to the WA CSR. This can be achieved by clearly marking the pathology request form, e.g. “Not for Registry”.

A woman can withdraw her details from the Register at any time by writing to the WACCPP via the contact details below and providing the following information:

  • full name
  • date of birth
  • address
  • Medicare number. 

Upon request for withdrawal, the WA CSR will provide the woman with a letter of acknowledgement.

Please note: for all cervical screening and follow-up tests taken from 1 December 2017, laboratories are no longer required to identify those that are ‘not for registry’. At this time, the National Cancer Screening Register ‘opt-off’ processes will occur, as per the National Cancer Screening Register Act 2016 (external site). For information about opting off the National Cancer Screening Register, visit the NCSR website (external site) or call 1800 627 701.

Requesting data from the CSR

The CSR plays a vital role in providing healthcare providers a complete WA cervical screening history to assist in the management of women with screen detected abnormalities.

The CSR can also provide epidemiological data to:

  • monitor participation rates and patterns
  • assist program planning
  • support approved research – alleviating and preventing cervical cancer
  • increase public awareness by publishing statistical profiles
  • assist compilation of comparative data by national organisations approved by the data custodian.

To discuss your data requirements, please contact the WACCPP via the contact details below.

Making a complaint

To make a complaint regarding the CSR, please contact the King Edward Memorial Hospital Customer Service Unit (external site).

If this approach does not address or resolve the complaint, then the matter may be taken to the Health and Disability Services Complaints Office (HaDSCO) (external site).

More information

WA Cervical Cancer Prevention Program

Opening hours: 8.00am – 4.30pm, Monday to Friday
Phone: 9323 6788 or 13 15 56 (cost of a local call)
Email: cervicalscreening@health.wa.gov.au
Fax: 9323 6711
Address: 1070 Hay Street, West Perth WA 6005

Produced by

WA Cervical Cancer Prevention Program